Our Angel, Mackenzie

Showing posts with label family life. Show all posts
Showing posts with label family life. Show all posts

Thursday, September 13, 2012

Thankful Thursday - Everything's Coming Up Roses

Well almost everything!!! 

I'm Thankful for:

  • The fact that Anna got "Polka Dots" this past weekend. God has a mysterious way of working.  I was trying to find a way to go in to the walk in clinic to see my Doctor.  Of course walk in at our clinic is only open in the morning and I'm at work.  However, I needed to make sure Anna didn't have something contagious that I could take to work.  So I left my boss a message that I'd come in late (also thankful for a position that doesn't interrupt anyone else) and took her to the doctor... therefore getting the chance to talk to him about my uncertainties.

  • That my doctor agreed that it was in my best interest to go back on my medication... so hopefully I'm feeling better soon!

  • Mackenzie's Rose, the pictures really don't do it justice.  There are almost 30 roses on it right now from buds to full blooms.






  • That harvest is going really well - we help Jeff's parents with harvest, well I don't do much during the week, especially since it seems Anna has an allergy to canola...

  • My handsome, hardworking hubby.  Jeff works from 7 a.m. - 5 p.m. and way later some days, and right now he's been going to the farm after work and helping with harvest too.

  • My little big girl, Anna - that face says it all.


  • For the people who have stepped forward to write post #100!!!  Yes, there are numerous intriguing writers who have me sitting on pins and needles!  I can't wait to share!!  If you want to contribute it's not to late!!!  Let me know!



Thursday, April 26, 2012

birthday blue

Well, I feel like you've been waiting forever to read something new from me.  So here we go...

I recently had a birthday, my 29th.

When you become an adult, birthdays really aren't all that grand.  This year was no exception.  I worked and it was just another regular work day.  I nice friend in the kitchen insisted I have a cookie for my birthday, so how could a girl resist?  My work day went just fine, and even had a great chat with a friend about loss... I picked up Anna and we headed for home.  On the way home I just started to feel very sad.

I'm sure I've mentioned in the last few weeks how this time of year, between Anna's and Mackenzie's birthdays is so very imprinted in full color in my memory.  I don't really know why, but there are just so many events.  I remember on my birthday last year, my friend Keltie and I went for a really long walk (7 kms) in town.  By the time we got back to our cars I was really sore.  I could barely walk when i went to Jeff's parents' for supper!  But we had such a good visit, Keltie and I.  Anyway, I remember talking about, and thinking numerous times through out the day, that next year on my birthday we would gave a 10.5 month old! 

Going back to my drive home...  I was recalling all those memories. I don't have my 10.5 year old...  Birthdays at our house are all about family and friends.  I wasn't going to spend the night with my whole family, I always feel like someone is missing.  And she is.  I asked Anna if she thought we should stop and visit Mackenzie's rose (the cemetery) on our way home.  She said no.  I was disappointed but I wasn't going to stop if she didn't want to.  However, as we approached the church she said, "Stop, let's see Mackenzie's rose."  I was relieved, feeling like that would be the only way i could spend a small moment of my birthday with both my beautiful daughters.  

I completely lost it.  I just stood there and bawled.  We didn't stay that long cause Anna was cold...  I cried on the way home and at home.  Anna gave me lots of hugs and kisses, and she knew I was upset.  I was also so irritable.  I was on the verge of an anxiety attack all afternoon.  I hate that feeling.  That's how I felt during Mackenzie's pregnancy day in and day out.  When I get like that I just need to be left alone and do my thing, however, I have a beautiful 3 year old, so that's not possible.  I called my mom.  That helped a bit, and I tried some friends to, but they weren't home.

Jeff finally got home just after five.  I told him he needed to go get Subway for supper because I needed some alone time.  He didn't protest... maybe cause he loves Subway, maybe because he knows the end result if I don't get to compose myself.  So off he and Anna went.  They even stopped and washed my Jeep waste more time.  Honestly if I could have just crawled into a dark hole, I would have.  Instead I cleaned!  So at least the house benefited.

I hate that I felt this way on my birthday.
I hate that I felt like i had to go to the cemetery to spend time with my baby on my birthday.
I hate that I sent my loved ones out of the house because I was loosing control.
I hate that I remember last years' birthday so vividly.
I hate that I felt so much better the next day because it wasn't my birthday.

My birthday was just another special occasion that Mackenzie's laugh wasn't heard at.  That we didn't witness her smiles.  I bet she would have been crawling and really close to walking.  On my birthday, she would have worn a cute little dress, and tried a little cake.

I'm happy that we celebrated my birthday with Jeff's parent's a couple days before the day.  I wouldn't have done well on the actual day at their house.  It takes a lot of energy to keep your composure outside of your home and comfort zone.  I don't want to keep burdening people with my grief.  I don't want to keep agonizing them over it.  SO I sit here, lost in my thoughts of last year, and what I wished this year would have been.

Next up is Mother's Day... ugh...

Tuesday, April 03, 2012

Still alive

Yes, I'm still alive.  I've been taking some time out from the computer.  I just have so much to do.  And Anna just really wants her momma when we get home from work, and after she goes to bed momma has lots to do and I just don't get here often enough.  Oh, and I may still be alive, but my computer... well it's not doing so well!  So that would be the biggest reason I haven't been here much lately.  I spend more time restarting this thing, resetting the router, unplugging the router from the back, waiting for the freezes to go away... oh, how the list goes on.  Good news is, I get a minuscule amount of $ back from income tax so maybe that can go in a "computer fund".  Now, if I could only convince my handsome husband to let me dip into his income tax refund, I'd be back in full business in fine style :)

Anna's birthday was yesterday!  what a blast.  Beautiful day out, beautiful friends, beautiful memories...  I hope to get some pictures up soon... whenever i have 5 hours to spare.  Cause you know that it's going to take this "technologically challenged" machine, to figure out what it's doing in order to download said pictures.  (sigh)  ugg...  if only we weren't responsible and I was ok with going and buying a new computer on my credit card, line of credit, sears card, staples card.... or savings account...  WHY?  do we have to be so financially responsible...!!!  I know we'll be thankful that we are, when a minimum number of bills come in...

ok, so I'm really just rambling about my old computer...  I've had it longer then I've been married!  Speaking of which, one of my residents asked me why I wasn't at work on the 23rd of March, to which i responded, "my husband took me to Banff for our anniversary."  "How long have you been married?" she asked.  "5 years."  she smiled with a twinkle in her eye.  "You've probably been married 5 times longer then that," I laughed.  "Well," she laughed, "Actually 65 years!!!!".   Yep, I hope Jeff and I have 60 more great years together.  I'll be 88, Jeff'll be 94! 

Good night, hope to get back with some pictures soon.

Wednesday, February 22, 2012

Wordless Wednesday - Skiing!

Kimmy, Anna and I





cousins - Anna, Nathan and Dylan

Anna giving baby Ally loves

Precious baby Ally!




Thank you to our wonderful neighbor, Laurie, for taking the really nice pictures (the first 6). 
Great job Laurie!

Thursday, February 16, 2012

Rockin' Anger

Well for a step in grief I wasn't really sure I was even going to get to, I'm really rockin' this anger stage.

This week it's insurance.  Specifically "Life Insurance".  I am not looking to make a buck off my family tradgedy, but looking for some knowledge, even so I can pass the information on to someone else.

My mom and I had a talk a while back about insurance benefits.  She encouraged me to check what my policy is through work.  Well, I finally did.  This is the answer I got... this is not quoting the book, but just a sum up.

Basically my insurance covers myself, "1" spouse (really they specify one!), and any dependant(s) for accidental death or dismemberment. 

The definition I found for a dependant (in relation to this topic) is:


Dependant - a person who depends on another person or organisation, etc.  for support, aid, life or sustenance...

Apparently according to insurance, Mackenzie was not my dependant.  Please explain to me how the baby I gave life to for 38 weeks was not dependant on me???  Really?  In the eyes of the "powers that be" of the insurance world, Mackenzie was not my dependant not only because she didn't breathe outside my body, but she didn't breathe outside the hospital walls. I am the only person who thinks that is absurd???  A baby has to be taken outside the hospital by his/her parents in order to be considered a dependant.  I don't even want to know what the life insurance company would say had she born alive, and passed away suddenly hours after birth...

I understand they need to draw a "line" somewhere.  But come on!!!  If Mackenzie would have been born at that 21 - 24 week (can't remember the exact week that they determine a "fetus" viable outside the womb) they would have done everything humanly possible to save her.  Yet, at 38 weeks, she gets nothing!  She is still considered a fetus.  I'm sorry, but she did breathe.  She was breathing inside of me!!!!  She was my dependant daughter.  She depended on me to breathe so she could breathe, on me to eat so she could eat.

When the nice lady I spoke to read this information to me on Tuesday I politely said, "OK, I understand."  It took me a full 48 hrs to process.  I brought this subject up at coffee today with my wonderful coworkers.  These women are moms too.  They were also disturbed by this fact.  Pointing out that if I would have wanted to terminate, she would have been considered a fetus, not a baby.  Had she born a premie, she would have been considered a baby, as early as 21 or 24 weeks gestation.  Where is the support for bereaved parents who have lost the most precious person (along side their other children) in their lives????

Why do these babies get treated like they didn't exist?  All I heard when being told this information was, "She wasn't really your daughter."  No one said that out loud, but by telling me Mackenzie was not my dependant, that is what I, the mother of a baby born to God, heard.  Seriously, there is something wrong with this whole picture.  We, parents who've suffered tragic losse,s don't need to worry about the costs of the trials and tribulations we're facing, we can barely function.  This is when "Life Insurance" is needed the most.  As one coworker pointed out, it's called "Life" insurance for a reason.  It's to help support those who are living, not the ones who are... well, dead.  Other wise it would be called "dead insurance".  I can't believe I pay for "Life Insurance", when it wasn't there for me when I lost such a precious life.  What a slap in the face.

Besides all this... the lady that I talked to asked me why I was concerned.  (I did tell her that I was just interested to see what the policy stated and that it was probably to late if there was any help to be applied for.)  I told her I just wanted to know, since we did incur expenses.  Can you imagine what she asked me?  She asked me, "Well, what do you mean that you had expenses?  Didn't the hospital provide you with options to reduce cost?"

*   *   *
Did you catch your breath?

Um Hello???  Any body home?  I felt like asking her if she had kids, and if so what expenses would she have if one of them, Lord forbid, were to pass away.

I told her that yes, the hospital did tell us about our option to have Mackenzie cremated in a mass cremation and burried in a mass grave somewhere in Edmonton.  Oh, but we would have been told where... yippee.  I also told her that was not an option!  I can understand some people are OK with that, but not us.  We couldn't even imagine her being "alone" in the cemetery 5 minutes from our house.  That's why Grandma gave us her extra plots and Mackenzie is burried right beside her Great Grandfather.

As for other costs, I said, "uh, we had to have her transported from Edmonton to Killam.  We had a funeral, and we bought her a headstone.  I would never have not done any of these things.  I was ready to spend our savings on whatever we had to, in order to honour our daughter properly.  We are fortunate to have such wonderful friends and family who stepped up and donated memorial funds that we put towards her memorial marker and amazing parents, who did incur the remaining costs for us (of course they waited until after everything was said and done to tell us).  And I didn't spare a thing.  When we met with the florist I ordered what I wanted, without considering the cost, because I needed everything to be as beautiful as Mackenzie.

There so many other costs that our families had that i didn't even mention to this woman, like:
· my dad's flight from Fort Mac to Edmonton.
· my dad's flight back to Fort Mac from Edmonton.
· all the driving back and forth (especially for my dear friend who drove me, Anna and even Jeff around)
· the lost wages for both Jeff and myself
· and the list could go on and on.
· besides all that, how do they know that we didn't have to stay in hotels, eat out, etc.???
Don't get me wrong here.  I don't want the money.  That's not what this is about.  This is about the loss of humanity and decency.  This is about the loss of "life".  The loss of rights for these little angels.

I would hate to imagine a family, much like my own, who doesn't have family near to help with these expenses when faced with a similar situation.  If we didn't have money tucked away, and had no family to help, would we have had to choose that "cost reduction" option?  Would that choice be made because there are no funds? and your Life Insurance company is not concerned with the life of a 38 week gestation baby, who is called to God before ever taking her first breath outside the womb?

Mackenzie was my daughter, my dependant from the moment she was conceived.  And no, I will not let some heartless "Life" Insurance agency deny me of that.  I just pray that none of their employees, or reps or whom ever makes those decisions at these big firms, EVER EVER has to go through what I've gone through.  I hope those decision makers don't EVER have to face a friend or family member who is dealing with the loss of their oh so dependant, baby.  Cause if they do, that's when they'll realise just how dependant the lives of these quiet, anges are. 

Mackenzie, my sweet baby girl, mommy knows just how precious you are, so precious to me, daddy, Anna,, your entire family and so many friends.  Most of all, you are a child.  You are a child of God.  God hold us all in his arms, where we can feel one anothers love.


Not even a sparrow, worth only half a penny, can fall to the ground without your Father knowing it. 
And the very hairs on your head are all numbered. 
So don't be afraid; you are more valuable to him than a whole flock of sparrows.
Matthew 10:29 - 31

Tuesday, February 14, 2012

Happy Valentine's Day!

I best start this post with some really cute pictures...
Playing drums




flying kite with daddy


Anna is the one and only child at our church,
so she gets to ring the bells.

baking cookies with grandma

Anna sleeping with all of her stuffed animals on the kitchen floor.

Making Valentine cupcakes with mommy and grandma.


Opening a Valentine from an April friend! 
She was so excited!!

Sleeping with Austin bear, (named after her big cousin)
and Mackenzie bear.

A family photo.  a little blurry, i think the camera
couldn't focus cause there was to much movement.

Last night Anna needed a brown heart sticker.
She put it on her chin just like Grandpa's (Jeff's dad)
facial hair!


Ok, we started with cute pictures of my "warrior princess".  What a day!  And it's only 2:45.  She screamed and cried while she was supposed to eat breakfast, so I took her to get dressed, where she continued her tantrum.  Anna ended up packing her oatmeal to go and continued the festival of screams in the car.

She was fine when I dropped her and her cute cupcakes off at daycare.  When I picked her up after work, she started right where we left off this morning.  Crying and screaming... what the heck?  We were supposed to have a play date with a friend this afternoon, and because I needed lunch, Anna and I were going to go to Subway first.  Well, I put on my mean mommy panties, and told her that if she couldn't be nice we were cancelling.  And we did!!!  I've never actually followed through with that big of a threat!  I had to call an out of town friend and explain.  She was the sweetest, and totally understood. 

When we got home, I laid with Anna in her bed for a while, another first.  I usually lay with her on the couch so she doesn't cry.  She eventually got back to sleep and I snuck out.  I'm hoping in a few days, I can skip the laying down with her part... but I need a rest too ;)

So now I have time to write about my great day because the "warrior princess" is sleeping
 and I have time for me.  I should be exercising or cleaning the stack of paperwork on my kitchen counter...

I hope you had a Happy Valentine's Day!

Monday, February 13, 2012

Yellow Skin

Sorry I haven't been around much lately.  I've been really enjoying life, and keeping busy with my family, work and exercise (got back to running/jogging).

So here's where we're at:

My mother in law has been stating to me for quite some time (over a year) that my skin is very yellow.  I kept brushing it off.  Well, I finally mentioned it to my doctor in early December, so we did some blood work.  First round everything came back normal, kidney functions, liver functions... etc.  So we did more blood work so we did another round the following week.  My wonderful doctor left me a message that my beta carotene levels were 10.6.  He stated that "normal" is between 1-5!  YIKES!  He had given me an article from a medical magazine about yellow skin and it suggested the beta carotene's could be high because of my diet.  So in his message he said to take a look at what I'm eating.  So to make a long story short, I figured out after about a week that it wasn't my diet buy a vitamin type supplement that I was taking.  I went in to see the doctor again, and he had another doctor sit in on my appointment for a consult.  They both said that it is rare to see an adult have that high of beta carotene levels and that it's usually young ones, who eat to many carrots when first starting solids, who we see with orange noses.  They were both a concerned.  I showed them the supplement I was taking and they both told me to stop taking it immediately and it was definitely part of/the cause of the problem.  Turns out each capsule has 1.8 mg of beta carotene and  I was taking 4 a day.  Seems like my body can't handle that much, and my liver and kidneys can't process it fast enough.

So I stopped taking the supplement right after that appointment.  A few weeks ago my mom called.  She told me that she had been doing some research.  She asked if I remembered that she had "hemochromatosis".  I didn't recognize that word at all.  She went on to explain that it is a type of liver disease that is "Unfortunately, Neonatal Hemochromatosis is usually deadly to the fetus (unborn baby) or if born alive, kills the baby in the first weeks or months of the baby's life due to complications of the toxic amounts of iron in the baby's body.   A liver transplant can, in some cases, save the baby's life and/or a combination of special drugs.  Occasionally, a baby will "overcome" the effects of NH and survive without a liver transplant.  It is imperative that the baby is treated by physicians familiar with the disease or physicians willing to consult with experts familiar with this disease.  A woman may have one or more healthy children in her life before having an NH baby.  A woman can have a healthy child after an NH baby, however, the risk of a woman having another NH baby after having her first NH baby is greater than 80%.  The good news is that new research has provided a treatment for such women who become pregnant again permitting them to have a healthy baby in the future.  More information on this miraculous treatment appears on this web site."  http://www.neonatalhemochromatosis.org/

Hmmm.. That's interesting isn't it?  I told mom I don't "need" a reason for the loss of my daughter, but I do need to know that it won't happen again.  The truth is, as I contemplate all these new findings, that a little insight into what may have happened is good...

Mom, was out here this past week.  I drug her to the walk in clinic to see my doctor.  I had recently had my beta carotene levels checked and wanted the results and I needed to ask him about this hemochromatosis.  We waited about 2 1/2 hours, but the staff know I'll wait to see my doctor instead of someone else.  There is just to much history to go over if I see a different doctor.  He gave me my new beta carotene level , 9.1.  So it has come down 1.5 in about 45 days.  Good??  I guess so?!  seems slow, and he said it could take a year or more.

Then I asked him what he knew about hemochromatosis.  I told him mom had it.  He looked at us in a kinda of stunned way.  This liver disease is genetic.  It can lie dormant in you and then become active, explains why mom had 3 healthy kids.  So I asked if I could be tested, and he said "Yes, you definately have to be tested."  I told him that I had googled it, and that I did read that it is fatal to babies of pregnant mommies.  And he nodded and said "yes".   Just before we left he said, "I didn't realize that your mom had this."  And I told him not to worry about it, it's not anyone's fault, cause I didn't realize it either.  Mom had told me to get tested when she was diagnonsed... but I was in college, more worried about exams and project due dates...

So I did more blood work.  I will know mid-week some results, like iron levels.  The major test gets sent to Edmonton for genetic testing, those results will a couple weeks.

Maybe I don't have this problem, maybe that's now what happened to Mackenzie.  And that's ok.  Even if I do have it, I will never really know what happened because we didn't put our little angel through any testing.  What I do know is that I was blessed by God to have such a precious, beautiful little daughter with me for 38 weeks in my womb.  I know that Mackenzie has forever changed my life, and that she is with me everyday.  For example, someone saw a rainbow at work today... if that rainbow was created in the way the kitchen aid poored stuff into a slop bucket or not, it was a rainbow.   Mackenzie has given me hope.

I know, that our Mackenzie was called by God, to watch over us in heaven, and that she has served a tremendous purpose in this world.

Friday, January 27, 2012

Friday Night Leftovers - Playing in the Dark

What's better then taking your 2 & 1/2 year old outside to play in the dark?  We put handlamps on and the three of head out to explore our yard.  Everything is "new' a night.  We walk, pull Anna in the sleigh, watch Anna run down the driveway.  Every once in a while she "falls" cause "there is just so much snow mommy!"  yah, all 3' of it...  we also check out all the dear, coyote, and little critter tracks.

And we make...

SNOW ANGELS!!







Wednesday, January 11, 2012

Wordless Wednesday _ Christmas Randomness

Santa came to our house

excited to see Santa!

Anna glitter glue fingers



Nap time! 

Christmas Eve @ Grandma and Grandpa Lukan's
The Night Before Christmas Tradition

The Angel Tradition (Anna's great great grandfather Henry Lukan
purchased this angel for the church many years ago.  You put
coins in her pouch and she nods her head.  I did this as a little girl too.)

Crafting with mom

Building Great Grandma Lukan a castle

ICE CREAM!!!

Playing shuffle board