Our Angel, Mackenzie

Monday, February 27, 2012

Heart Ache and Rainbows

Our hearts are aching.  The mommas of April 2009 have broken hearts.  We've suffered the loss of another preciously loved baby.  His name is Jacob Christian.  He was born on Friday morning.  He's a little prince, wrapped in arms of love.  For women who've never met, except for a few, we really are tight, we come together to support each other during the worst times.  This was one of those times...

Jacob's mommy has always been a friend that I was intrigued by.  Someone I wanted to get to know a lot better.  Neither of us knew some 3 years and 6 months ago, when we first met that we get to know each other in the most heart breaking way two women can.  We've both released our most precious angels to heaven.  It was not our choice, and that didn't make it any easier.  You don't get to say, "No, I don't want my baby to go now."  It's just the way God plans it.  But actually letting that precious little life be given over to the trust of our Lord is a difficult burden that I can't not describe.  There are not words intense enough to write or speak that would come close to the pain a mommy and daddy feel in these tumultuously beautiful moments in life.  Beautiful?  Yes, in some ways, yes...

These are the moments you see your husband in a mirror that is so perfect it is almost jaded.  As a loving parent you have no control over your emotions when you surrender a child to God.  Seeing the emotions in your spouses face, eyes, and soul... is gut wrenching, but beautiful.

Life is tainted now... to anyone who has suffered the loss of a child, don't think you have to go back to normal.  This is a new normal.  The pain will fade a little, I know I had a hard time believing that too.  But it does hurt a tiny bit less. Yes, some day in the far off future your life will find a new routine of sorts.  A routine that revolves around the "what if"S and memories of a dainty little girl or handsome little boy that will never see the blue of the sky, the green of the grass, and the sparkle of a new fallen snow.  The beautiful eyes of these angels will never see the rainbows...

I was honoured to be able to share some of these moments with such a beautiful, loving mommy.  She called me the night before her son was born.  I listened, we cried.  I let her know that everything she was feeling is OK.  That no one can tell her what she is doing is wrong.  When it was time to go I told her, "Breathe, that's all you can do... breathe.  I love you."

My heart hurt all weekend, until I was updated.  I had wished when we all first found out that baby Jacob was going to heaven that Mackenzie would be there.  I was sad that I didn't see her shining brilliantly in the sky on Friday, it was overcast.  However, on the way to work Anna told me twice, "Look mommy!  My rainbow!  It's back!  It's here!"  I scanned the sky and the skyline, sometimes Anna thinks the brilliant colors of a sunrise our rainbows... I found no rainbow and no colors from the sun, that was hidden amongst the clouds.  Both times I asked Anna, "Where Anna?"  and both times she pointed through the front window of the Jeep, exclaiming, "Right there mommy!!  My rainbow is right there!  See it?!" 

I never saw those rainbows on Friday.  I only put two and two together last night, that Anna had to have seen something only the innocent eyes of a child could see.  Mackenzie was with us, and I know she was with Jacob... welcoming him home.

Tiny, precious rainbows that were with Dannie
 on vacation in BC.  February 22, 2012

A gorgeous bold rainbow paying Heather T. a visit.
Abbotsford, BC  February 22, 2012

Wednesday, February 22, 2012

Wordless Wednesday - Skiing!

Kimmy, Anna and I





cousins - Anna, Nathan and Dylan

Anna giving baby Ally loves

Precious baby Ally!




Thank you to our wonderful neighbor, Laurie, for taking the really nice pictures (the first 6). 
Great job Laurie!

Tuesday, February 21, 2012

You Can Never Go Back...


 This is a hard post for me to do.  I have waited a long long time to do this.  I could not bring myself to write this post and show you these pictures until today.  I do this today because a very very dear friend is living what I have been living for the past nine months.  Yes, Mackenzie would have been 9 months old today.  I needed to post these pictures so my friend would know what she may possibly receive from the hospital after...  I also "know" (online) another family who is also living with the knowledge their daughter will become an angel.  I wanted to show you this so you know about some possible options.  I don't know if every hospital offers these services, but it doesn't hurt to ask, you can never go back.  

The reason I knew of these beautiful and precious gifts is because a young mom that I worked with (whom I now call one of my dearest friends), posted her son's precious memories online a few years back.  Her willingness to share gave me the knowledge, and I was able to ask the staff and social worker about these items, I'm so glad I could...  you can never go back.

The first items you see here are from my "mommas", yes that special group of online friends.  They all got together online and had some special gifts made/had made for Mackenzie.  I will apologize to a couple friends, there are a few gifts that I missed because they are on display in my house and not in my memory box, so I missed taking their pictures.


From my Mommas

Mackenzie's Quilt

                                       



Mackenzie's Doll and Bear
(The bear I received from Thyme Maternity
when Kim and I went shopping together,
 the week before I had Mackenzie. 
We both received a teddy with our purchase. 
Kim's precious Ally now has that same teddy bear.
I've tickled Ally's cute little nose with her teddy...)


Pendant made by Ven


From the Grey Nuns Hospital, Edmonton

Certificate of Life


Coming Home Outfit
(I purchased this a couple months before my due date.)


Mackenzie's Hands


Mackenzie's Feet


Mackenzie's Hand Prints


Mackenzie's Foot Prints
(The pink blanket in the background is
the one she was wrapped in at the hospital.
I keep it in my top drawer.)


Mackenzie's Hat and Hospital Band


Mackenzie's Bassinet Card

 

What I wish I had...

is a lock of her hair...  the staff talked about that with me before she was born.  Mackenzie never had a lot of hair, but I wonder if we could have had just a little bit.  My heart aches that I don't have that.  It breaks my heart that it's to late.  You can never go back...

So if, unfortunately, you ever know someone who goes through this traumatic experience of loosing a child, you now have some knowledge to share with them about some beautiful keepsakes.  Share this knowledge with them in a gentle, loving way.  You can never go back...



Happy 9 months my little angel, Mackenzie!
I know you were peeking out from
behind some clouds today,
two of my mommas saw you.

Much love, Mommy
XOXOXO


Thursday, February 16, 2012

Rockin' Anger

Well for a step in grief I wasn't really sure I was even going to get to, I'm really rockin' this anger stage.

This week it's insurance.  Specifically "Life Insurance".  I am not looking to make a buck off my family tradgedy, but looking for some knowledge, even so I can pass the information on to someone else.

My mom and I had a talk a while back about insurance benefits.  She encouraged me to check what my policy is through work.  Well, I finally did.  This is the answer I got... this is not quoting the book, but just a sum up.

Basically my insurance covers myself, "1" spouse (really they specify one!), and any dependant(s) for accidental death or dismemberment. 

The definition I found for a dependant (in relation to this topic) is:


Dependant - a person who depends on another person or organisation, etc.  for support, aid, life or sustenance...

Apparently according to insurance, Mackenzie was not my dependant.  Please explain to me how the baby I gave life to for 38 weeks was not dependant on me???  Really?  In the eyes of the "powers that be" of the insurance world, Mackenzie was not my dependant not only because she didn't breathe outside my body, but she didn't breathe outside the hospital walls. I am the only person who thinks that is absurd???  A baby has to be taken outside the hospital by his/her parents in order to be considered a dependant.  I don't even want to know what the life insurance company would say had she born alive, and passed away suddenly hours after birth...

I understand they need to draw a "line" somewhere.  But come on!!!  If Mackenzie would have been born at that 21 - 24 week (can't remember the exact week that they determine a "fetus" viable outside the womb) they would have done everything humanly possible to save her.  Yet, at 38 weeks, she gets nothing!  She is still considered a fetus.  I'm sorry, but she did breathe.  She was breathing inside of me!!!!  She was my dependant daughter.  She depended on me to breathe so she could breathe, on me to eat so she could eat.

When the nice lady I spoke to read this information to me on Tuesday I politely said, "OK, I understand."  It took me a full 48 hrs to process.  I brought this subject up at coffee today with my wonderful coworkers.  These women are moms too.  They were also disturbed by this fact.  Pointing out that if I would have wanted to terminate, she would have been considered a fetus, not a baby.  Had she born a premie, she would have been considered a baby, as early as 21 or 24 weeks gestation.  Where is the support for bereaved parents who have lost the most precious person (along side their other children) in their lives????

Why do these babies get treated like they didn't exist?  All I heard when being told this information was, "She wasn't really your daughter."  No one said that out loud, but by telling me Mackenzie was not my dependant, that is what I, the mother of a baby born to God, heard.  Seriously, there is something wrong with this whole picture.  We, parents who've suffered tragic losse,s don't need to worry about the costs of the trials and tribulations we're facing, we can barely function.  This is when "Life Insurance" is needed the most.  As one coworker pointed out, it's called "Life" insurance for a reason.  It's to help support those who are living, not the ones who are... well, dead.  Other wise it would be called "dead insurance".  I can't believe I pay for "Life Insurance", when it wasn't there for me when I lost such a precious life.  What a slap in the face.

Besides all this... the lady that I talked to asked me why I was concerned.  (I did tell her that I was just interested to see what the policy stated and that it was probably to late if there was any help to be applied for.)  I told her I just wanted to know, since we did incur expenses.  Can you imagine what she asked me?  She asked me, "Well, what do you mean that you had expenses?  Didn't the hospital provide you with options to reduce cost?"

*   *   *
Did you catch your breath?

Um Hello???  Any body home?  I felt like asking her if she had kids, and if so what expenses would she have if one of them, Lord forbid, were to pass away.

I told her that yes, the hospital did tell us about our option to have Mackenzie cremated in a mass cremation and burried in a mass grave somewhere in Edmonton.  Oh, but we would have been told where... yippee.  I also told her that was not an option!  I can understand some people are OK with that, but not us.  We couldn't even imagine her being "alone" in the cemetery 5 minutes from our house.  That's why Grandma gave us her extra plots and Mackenzie is burried right beside her Great Grandfather.

As for other costs, I said, "uh, we had to have her transported from Edmonton to Killam.  We had a funeral, and we bought her a headstone.  I would never have not done any of these things.  I was ready to spend our savings on whatever we had to, in order to honour our daughter properly.  We are fortunate to have such wonderful friends and family who stepped up and donated memorial funds that we put towards her memorial marker and amazing parents, who did incur the remaining costs for us (of course they waited until after everything was said and done to tell us).  And I didn't spare a thing.  When we met with the florist I ordered what I wanted, without considering the cost, because I needed everything to be as beautiful as Mackenzie.

There so many other costs that our families had that i didn't even mention to this woman, like:
· my dad's flight from Fort Mac to Edmonton.
· my dad's flight back to Fort Mac from Edmonton.
· all the driving back and forth (especially for my dear friend who drove me, Anna and even Jeff around)
· the lost wages for both Jeff and myself
· and the list could go on and on.
· besides all that, how do they know that we didn't have to stay in hotels, eat out, etc.???
Don't get me wrong here.  I don't want the money.  That's not what this is about.  This is about the loss of humanity and decency.  This is about the loss of "life".  The loss of rights for these little angels.

I would hate to imagine a family, much like my own, who doesn't have family near to help with these expenses when faced with a similar situation.  If we didn't have money tucked away, and had no family to help, would we have had to choose that "cost reduction" option?  Would that choice be made because there are no funds? and your Life Insurance company is not concerned with the life of a 38 week gestation baby, who is called to God before ever taking her first breath outside the womb?

Mackenzie was my daughter, my dependant from the moment she was conceived.  And no, I will not let some heartless "Life" Insurance agency deny me of that.  I just pray that none of their employees, or reps or whom ever makes those decisions at these big firms, EVER EVER has to go through what I've gone through.  I hope those decision makers don't EVER have to face a friend or family member who is dealing with the loss of their oh so dependant, baby.  Cause if they do, that's when they'll realise just how dependant the lives of these quiet, anges are. 

Mackenzie, my sweet baby girl, mommy knows just how precious you are, so precious to me, daddy, Anna,, your entire family and so many friends.  Most of all, you are a child.  You are a child of God.  God hold us all in his arms, where we can feel one anothers love.


Not even a sparrow, worth only half a penny, can fall to the ground without your Father knowing it. 
And the very hairs on your head are all numbered. 
So don't be afraid; you are more valuable to him than a whole flock of sparrows.
Matthew 10:29 - 31

Tuesday, February 14, 2012

Happy Valentine's Day!

I best start this post with some really cute pictures...
Playing drums




flying kite with daddy


Anna is the one and only child at our church,
so she gets to ring the bells.

baking cookies with grandma

Anna sleeping with all of her stuffed animals on the kitchen floor.

Making Valentine cupcakes with mommy and grandma.


Opening a Valentine from an April friend! 
She was so excited!!

Sleeping with Austin bear, (named after her big cousin)
and Mackenzie bear.

A family photo.  a little blurry, i think the camera
couldn't focus cause there was to much movement.

Last night Anna needed a brown heart sticker.
She put it on her chin just like Grandpa's (Jeff's dad)
facial hair!


Ok, we started with cute pictures of my "warrior princess".  What a day!  And it's only 2:45.  She screamed and cried while she was supposed to eat breakfast, so I took her to get dressed, where she continued her tantrum.  Anna ended up packing her oatmeal to go and continued the festival of screams in the car.

She was fine when I dropped her and her cute cupcakes off at daycare.  When I picked her up after work, she started right where we left off this morning.  Crying and screaming... what the heck?  We were supposed to have a play date with a friend this afternoon, and because I needed lunch, Anna and I were going to go to Subway first.  Well, I put on my mean mommy panties, and told her that if she couldn't be nice we were cancelling.  And we did!!!  I've never actually followed through with that big of a threat!  I had to call an out of town friend and explain.  She was the sweetest, and totally understood. 

When we got home, I laid with Anna in her bed for a while, another first.  I usually lay with her on the couch so she doesn't cry.  She eventually got back to sleep and I snuck out.  I'm hoping in a few days, I can skip the laying down with her part... but I need a rest too ;)

So now I have time to write about my great day because the "warrior princess" is sleeping
 and I have time for me.  I should be exercising or cleaning the stack of paperwork on my kitchen counter...

I hope you had a Happy Valentine's Day!

Monday, February 13, 2012

Yellow Skin

Sorry I haven't been around much lately.  I've been really enjoying life, and keeping busy with my family, work and exercise (got back to running/jogging).

So here's where we're at:

My mother in law has been stating to me for quite some time (over a year) that my skin is very yellow.  I kept brushing it off.  Well, I finally mentioned it to my doctor in early December, so we did some blood work.  First round everything came back normal, kidney functions, liver functions... etc.  So we did more blood work so we did another round the following week.  My wonderful doctor left me a message that my beta carotene levels were 10.6.  He stated that "normal" is between 1-5!  YIKES!  He had given me an article from a medical magazine about yellow skin and it suggested the beta carotene's could be high because of my diet.  So in his message he said to take a look at what I'm eating.  So to make a long story short, I figured out after about a week that it wasn't my diet buy a vitamin type supplement that I was taking.  I went in to see the doctor again, and he had another doctor sit in on my appointment for a consult.  They both said that it is rare to see an adult have that high of beta carotene levels and that it's usually young ones, who eat to many carrots when first starting solids, who we see with orange noses.  They were both a concerned.  I showed them the supplement I was taking and they both told me to stop taking it immediately and it was definitely part of/the cause of the problem.  Turns out each capsule has 1.8 mg of beta carotene and  I was taking 4 a day.  Seems like my body can't handle that much, and my liver and kidneys can't process it fast enough.

So I stopped taking the supplement right after that appointment.  A few weeks ago my mom called.  She told me that she had been doing some research.  She asked if I remembered that she had "hemochromatosis".  I didn't recognize that word at all.  She went on to explain that it is a type of liver disease that is "Unfortunately, Neonatal Hemochromatosis is usually deadly to the fetus (unborn baby) or if born alive, kills the baby in the first weeks or months of the baby's life due to complications of the toxic amounts of iron in the baby's body.   A liver transplant can, in some cases, save the baby's life and/or a combination of special drugs.  Occasionally, a baby will "overcome" the effects of NH and survive without a liver transplant.  It is imperative that the baby is treated by physicians familiar with the disease or physicians willing to consult with experts familiar with this disease.  A woman may have one or more healthy children in her life before having an NH baby.  A woman can have a healthy child after an NH baby, however, the risk of a woman having another NH baby after having her first NH baby is greater than 80%.  The good news is that new research has provided a treatment for such women who become pregnant again permitting them to have a healthy baby in the future.  More information on this miraculous treatment appears on this web site."  http://www.neonatalhemochromatosis.org/

Hmmm.. That's interesting isn't it?  I told mom I don't "need" a reason for the loss of my daughter, but I do need to know that it won't happen again.  The truth is, as I contemplate all these new findings, that a little insight into what may have happened is good...

Mom, was out here this past week.  I drug her to the walk in clinic to see my doctor.  I had recently had my beta carotene levels checked and wanted the results and I needed to ask him about this hemochromatosis.  We waited about 2 1/2 hours, but the staff know I'll wait to see my doctor instead of someone else.  There is just to much history to go over if I see a different doctor.  He gave me my new beta carotene level , 9.1.  So it has come down 1.5 in about 45 days.  Good??  I guess so?!  seems slow, and he said it could take a year or more.

Then I asked him what he knew about hemochromatosis.  I told him mom had it.  He looked at us in a kinda of stunned way.  This liver disease is genetic.  It can lie dormant in you and then become active, explains why mom had 3 healthy kids.  So I asked if I could be tested, and he said "Yes, you definately have to be tested."  I told him that I had googled it, and that I did read that it is fatal to babies of pregnant mommies.  And he nodded and said "yes".   Just before we left he said, "I didn't realize that your mom had this."  And I told him not to worry about it, it's not anyone's fault, cause I didn't realize it either.  Mom had told me to get tested when she was diagnonsed... but I was in college, more worried about exams and project due dates...

So I did more blood work.  I will know mid-week some results, like iron levels.  The major test gets sent to Edmonton for genetic testing, those results will a couple weeks.

Maybe I don't have this problem, maybe that's now what happened to Mackenzie.  And that's ok.  Even if I do have it, I will never really know what happened because we didn't put our little angel through any testing.  What I do know is that I was blessed by God to have such a precious, beautiful little daughter with me for 38 weeks in my womb.  I know that Mackenzie has forever changed my life, and that she is with me everyday.  For example, someone saw a rainbow at work today... if that rainbow was created in the way the kitchen aid poored stuff into a slop bucket or not, it was a rainbow.   Mackenzie has given me hope.

I know, that our Mackenzie was called by God, to watch over us in heaven, and that she has served a tremendous purpose in this world.

Wednesday, February 01, 2012

Wordless Wednesday

February 1, 2010



February 1, 2011


February 1, 2012





And for Fun!

(red highlight)